Another visit to the ER!

well, once again as i was getting jordan ready for his shower, i noticed something on his leg. this really scared me because of the size of it:




i put him to bed and then called his dr. office. because they couldn't see it, they wanted me to take him to the ER again. i was more than happy too oblige since i was very worried. my first thought was a blood clot since there was soo much blood pooled into one area. after waiting almost 3 hours, we were assured that he thinks it is normal. this is one word you never want to hear your dr. say......think! shouldn't they know? he did say it didn't really fit the symptoms of a clot because the area was not hot and there were no lines coming from it. i was also told when i called his dr. that the reason the protein may not have showed up on the dr. office test is because they do not test it as good as the hospital, so he probably in fact still has protein in his urine. well, thanks for letting me know that AFTER i had been giving him motrin again for a couple of days! honestly, what is wrong with these dr.s??? to be honest, i LOVE the kids dr.s office. because this is farely rare, i am giving them the benefit of the doubt. i am at a dead end right now as to if i still look for answers or do i just wait to see if it actually does go away on it's own. i think i definitely want to see if i can get a referral for a neuphrologist, just so they can keep an eye on his kidneys, but we'll see if they will give me one. to me they seem to be acting like it's not a big deal, but this is my child and there are some very serious things that can go on with this.

something neat happened today though, we have a bunch of kids out at hyles anderson college in hammond in. i know my sister put in a prayer request for him there. one of the girls works in the clinic and mentioned to a dr. there about jordan. dr. streeter took a look at my blog and a description that was sent to him and he sent a fax with some things to get for him and a blood test he says jordan should have done. i looked up the items he said he should take which is mediberry & aloe gold (for the joints), but it is just too expensive for us ($65.00 for both). the blood test i plan on asking about when i go back to the dr. on monday. i think he will allow jordan to get it done, but i'm not sure. we'll see. i was so excited that dr. streeter took an interest in jordan's case. i know he is a busy man and i'm sure he has lots of patients, so this was really neat. when i get the results of the blood test, i am supposed to fax the results to dr. streeter, which i will definitely do.

on to other news, jordan went and got tutored today. he seems to be doing a little better, but it really is a day by day thing. you just never know. so far it has been every other day that he cannot walk. it tends to hit him more at night and through the night and early morning. he will be getting tutored tomorrow and friday assuming he is still feeling good enough. i am hoping that maybe next week we can atleast let him go half days. they do most of the teaching during the mornings, so if i let him go during the morning, he should not miss much. we'll see, worse comes to worse then we will continue getting him tutored. it really is a strange disease, on some days you would see him and he will be runnning around and playing just like normal, and the next day he will be laying down and crying out in pain. it honestly is the strangest thing i've ever seen. i think people tend not to take it seriously because of this, anyway, that is all for tonight. please continue to keep jordan in your prayers.