this morning i called his dr. office to get an appt. the dr. he was supposed to see is not working today, go figure! so, we got to see his dr. that he sees for his physicals which is fine by me. me and the nurse figured that out of the three we had to choose from, he has been there the longest and would know about it. turns out, he didn't really know too much about it. he had seen a couple of teenagers who had it when he was in a different practice, but their symptoms where a rash and the abdominal pain. i brought the pictures in and he couldn't beleive how big his knees were and i'm glad i brought them because although he still couldn't walk, the swelling had gone down. his dr. decided to get one of the new dr.s to come see it so he could see it for future reference, and it turns out that this dr.s son had had it. i was happy to have someone who knew first hand about what he was dealing with. his son had more of the stomach pain as well, and not the joint issues, but it was still nice to have him there. they did a urine sample and the protein is gone! so, although there is some things they can give him for the swelling, they want to hold off on the steroids as they are very addicting. they did say that since the protein is gone for now, that he can take ib prophen and motrin and that should help alot with the joint issues. they said to put him on a very strict regimen of motrin. he needs it every 4 hours without fail (not sure how that will go through the night though). he has had a few stomach cramps, but they have not been too bad, so hopefully we can avoid that part of it. he should be more comfortable now though. he needs to go back next monday to have his urine checked and for them to look at his joints again. he will need to be out of school for this week atleast, and they will take it week by week. the dr, found it quit ironic that he got this exactly when it should of ~ it most commonly strikes boys ages 2-10 (with 5-7 being the most common age), and in the fall. wouldn't you know that he is a 5 year old boy and it is fall! anyway, that is it for now. i hope you all have a great week. once again, nadia, if you are reading this or someone knows who she is, could you please contact me. i would love to talk to her. my email address again is: ds4nier@megalink.net
Monday, October 08, 2007
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3 comments:
thanks for the update stacy! Sounds like you are starting to get somewheres with this. I'll still pray for complete healing. :)
I just wanted to let you know I have been praying for Jordan since Mom called me on Saturday to let me know what's going on! It was really hard when I found out because I knew that I couldn't be there for him seeing how I'm in Indiana. Let Jordan know how much I love him and am praying for him to be healed!!! I'll keep looking on your page to see how he's doing. Give him a hug for me!
Praying for you all - hope that it continues to improve.
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