well, everything started happening on tuesday afternoon. he first started complaining of a mild headache when we went to the dr.s office for their referral for his and latoyas feet. we went to eat after and all of a sudden the little headache turned into a huge headache. he was crying and definitely in ALOT of pain. all of a sudden he cried out that his leg and foot was hurting too. as quicklt as it came on, the pain in his leg and foot went away. the headache remained and he spiked a fever. i was very perplexed by this, i gave him some pain medicine when we got home and he rested comfortably. for the next two days, he seemed to be fine, he would spike a fever and mention that his leg or legs were hurting, and then it would go away on it's own. i felt it was probably the flu (and he was haviing body aches). he continued to go to school and even went on a field trip on friday. we did the normal friday night shopping and he was fine then too. we got home at around 8 pm, and i gave him a shower. when he took of his clothes to get in is when i noticed the spots:
at first, i thought he had chicken pox. he stayed in the shower for about 30 min., and then when he got out, he could not walk, AT ALL.it was literally like a light switch, one minute he was fine and the next he couldn't walk at all. i immediately sat him on the toilet and got him dressed and in bed. i then went and did research for chicken pox with leg pain and headaches. all of what i found was saying these were serious side effects. i called the dr.s office and they said to go to the ER. i had to wait for my hubby to get home from work and woke jordan up to go to the ER at about 11:30 p.m. we got there and i had to get a wheelchair as he was still in too much pain and was unable to walk, and i could not carry him (he weighs 50 lbs.). anyway, we got in and got through the paper work and waited for the dr. he came in about 2 hours later. as soon as he looked at it, he knew what it was. it is not chicken pox, but rather: Henoch Schoenlein Purpura. they did lots of blood work and a urine sample. this is something that is caused by a viral infection and spreads throughout the body, but especially the joints in the legs and feet (hence not being able to walk), attacking the liver and bowels. most of the time it goes away on it's own without affecting these things, but obviously in jordan it is already affecting the joints, and he was found to be spilling protein in his urine, a sign that something is going on with his kidneys. we were released, but have to see his dr. on monday and he will be followed VERY closely for the next 2 months atleast. because he is showing some of the serious signs, they want to make sure it does not progress, we need to watch for blood in his urine and stools and major abdonimal pain. they say in the article that it is fairly common, yet the dr. we saw said he maybe sees it 1-2 time a year. here is some info i found on this, please read it so you know what we are facing, i cannot explain it the way it needs to be explained:
Henoch-Schonlein Purpura
No one knows what causes it. We do know that it often follows a viral respiratory infection. It seems to be some kind of allergic reaction to the virus. It has also been seen following Strep throat, prescription medicines, bee stings, chemical toxins, cold exposure, and food allergies. It can occur in epidemics. In the Northern Hemisphere it occurs most commonly between November and February. It is often accompanied by a low-grade fever, and just not feeling well. It most often affects children ages 2 through 10, boys more often than girls. The older the child (or adult), the more likely it is to be serious. We know that it can be life-threatening, but that most children recover. "It" is Henoch-Schonlein purpura (HSP).
HSP is a type of vasculitis -- an inflammation of blood vessels -- that was named for Drs. Henoch and Schonlein, who each discovered it independently more than 30 years after it was discovered by Dr. Heberden, who got no credit.
Tiny blood vessels in the skin swell and then hemorrhage, giving rise to the characteristic rash of HSP. The rash usually begins with small hives, or red patches, or red bumps, which can appear anywhere on the body, but especially on the legs and buttocks. This rash represents swollen blood vessels, and the spots blanch with pressure, since pressure moves the blood along the vessel. The allergic nature of the rash often makes it itch. As time passes, blood leaks from the swollen vessels, the rash changes from red to a bruised, purple color (hence the name purpura), and the rash no longer blanches when pressed. As the tiny bruises heal they turn to a rust color, and then fade. Each spot lasts for about five days. Often the rash comes in several crops, and a single child may have a rash of a variety of different colors. All children with HSP have the skin rash (by definition). The rash resolves without trace. ("A savvy mom named Beth Anderson wrote and suggested that when her son had HSP, "the term "blood blisters" was the key to describing the rash for those who couldn't see it in person. Most people have had a blood blister and can relate to the term better than bruises.")
The skin rash is the most obvious, and most common, finding in HSP -- but by no means the most serious. Blood vessels in other parts of the body can also be involved --most frequently in the joints, the intestines, and the kidneys. Rarely, vessels in the muscles, eyes, testicles, lungs, heart, and brain have become inflamed, sometimes leading to serious consequences.
Joint involvement occurs in two thirds of the children. The knees and ankles, particularly, often become swollen, tender, and painful with movement. This arthritis can be quite debilitating, but usually resolves in just a few days. No permanent deformity results, even with the most severe arthritis.
Inflammation of the blood vessels of the GI tract occurs in more than half of the children. Most of these experience abdominal pain, often quite severe. They will often vomit -- sometimes vomiting blood. More than half of the children with HSP will have bloody stools. Serious short-term complications most often come from the GI involvement.
Kidney involvement affects between one-fourth and one-half of the children with HSP. They may have blood and/or protein in the urine. They may even have kidney failure. Serious long-term complications most often come from the kidney involvement.
Full-blown HSP may appear suddenly, or different symptoms may appear gradually over several weeks. The order in which the symptoms appear varies. A child might have unexplained abdominal pain, or knee pain, or bloody stools, or blood in the urine for a week before other symptoms appear to bring the correct diagnosis into focus. The diagnosis is usually made when the rash turns purple.
Most children recover fully. The disease may be quite mild and last only 2 or 3 days. For those with moderate to severe symptoms, though, the disease lasts an average of 4 to 6 weeks, with relapses occurring up to a year later (particularly after the child gets another cold or is re-exposed to the offending agent).
Rarely, children die from complications experienced near the time of diagnosis (bowel perforation, hemorrhage, seizure, stroke, etc.). Having made it through the acute crisis, the long-term outcome depends on the extent of kidney involvement. With no kidney involvement, full recovery is the rule. One-fourth of the children with kidney problems will still have detectable problems years later. By 8 years after onset, however, only 2% will still have any kidney problems (Primary Pediatric Care, Mosby, 1992). Unfortunately, up to half of those will ultimately die from chronic renal failure. The long-term prognosis can often be determined from a renal biopsy early on.
There is no specific treatment for HSP. If the initiating trigger is identified for an individual child, everything possible should be done to remove it. If the cause is thought to be a bacterial infection, such as Strep throat, prophylactic antibiotics are often given once the infection is eliminated, to prevent recurrence. Anti-inflammatory drugs, and sometimes immunosuppresive drugs, are used to provide much-needed symptomatic relief. Steroids may cause dramatic reversal of GI or brain involvement, but have not been shown to be very effective for the kidneys.
HSP is a very serious disease. Thankfully, it is also very uncommon. The odds are that your dear little friend will recover from this with nothing to show for it except some bad memories.
So, that being said, please keep jordan in your prayers. the pain in his legs has subsided for now, he is up and wlaking around and playing, but i expect that won't be the last run in for us. i will keep everyone updated after we go to the dr. on monday.
on to a different note, here are the girls in their new, fitting duck costumes. aren't they adorable:
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