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Tuesday, October 17, 2006

Late or Early Update

well, i see that the name thing didn't go over so well. oh well, i guess people are just to shy to say hi. anyway, sorry for not updating last night, it was just a relaxing night.
anyway, i got a call from the specialist in portland this morning. she said the reason she hasn't gotten back to me is because she honestly didn't know what to tell me. she said if i decide to that we can definitely have the lumps removed so she can look at them, it's just a matter of finding a surgeon willing to do it. her concern is that kaylee is so little and she doesn't know how she will handle the anesthesia. she said other than that, all else will be cosmetic. her recommendation is that we wait it out and see if they continue to grow. she said they will start treating her as inactive, the problem with that is if it is in the lymph nodes and we treat her as inactive, the tb could definitely spread because one medication will not stop it. i honestly don't know what to do. my gut says wait, but what if it is tb in there??? we have a specialist appt. with dr. penner in brunswick and she said to discuss it with him as he will be the one to remove them. she said whatever dr. penner and i decide, she will go along with. she said because of the size and the fact that they are not growing anymore, that she does not think that it is tb in there. she said the only way to know for sure is to have them taken out and looked at. she doesn't want to start the medication again until after we meet with dr. penner again just in case he does decide to take them out. i guess i will update again after we see him. she also said i realize that this is not my child, so i see why you would want to know for sure, and probably nothing i say unless i can say it with 100% certainty is going to satisfy you, and i don't blame you. she was much nicer this time, of course she had the charts so she could really talk to me too. anyway, i will possible update again tonight if anything interesting happens. have a great day!!
i thought just to make brighten things up, i'd shjare some of my favorite photos of when the girls first came home: (they were about 1-1 1/2 mo. old)

1 comments:

Laura said...

I do read your blog when I have time. I have been out of town for over a week. Anyway I am Laura, in Salt Lake Utah... a fellow MOMO twin mom. Great job on your blog.