We had our appt.

we had our appt this afternoon in portland for kaylee's tb. it was quit the dissapointment. she basically said there is nothing we can do till i have her chart. duh...why did you rush her in then if you knew you wouldn't be able to do anything till you saw her chart????? she also said to stop the medication until she gets back to me....okay, let's wait till she's active, how about that???? she said she doesn't think it's tb that's in her lymph nodes, because it's not big enough??? she's a baby, if it got any bigger, it would take up the whole side of her face (a little exaggeration on my part). anyway, she also said that she doesn't want to biopsy it because it's not big enough?? then how are you going to know if it's in her lymph nodes??? Can you tell how much i like this dr.??? she said she wanted to do the least painful thing....let's see, so we just wait around till it gets in her lungs and the rest of her body ~ that would be the least painful. so, i don't know if she is going to be treating her as active or non-active. if she is treating her as active, she will have to be on several different medications for a LONG time, if she treats her as inactive, she gets one medication for 6-9 mo. my point is if you son't know if the lymph nodes are active or inactive, then how do you know how to treat her. i am VERY frustrated. i don't want to do painful tests on kaylee either, but if it means getting her treated the right way, then by all means DO IT!!!
anyway, i will still keep everyone updated, but that is all for now. nothing else exciting has happened and once again there are no pictures. seems i didn't have time because i was running around for no good reason!!! if only i were a outspoken person, but lucky for them, i am not. i think i will push for them to do the biopsy though. have a great night.